Tagged with autism

to the autistic people in the crowd

to the autistic people in the crowd

I had made a decision. Before I said anything else, I would say this. Even if it were technically only addressed to 3 out of the 240 people in that room, it mattered. And it mattered that the other 237 hear it. This is what I said. Ed note: I did my best to transcribe the words … Continue reading

what i learned in (very) northern maine

what i learned in (very) northern maine

On Saturday night, I had the honor and delight of sharing the podium with Michele Gauvin at the Aroostook County Autism Support fundraiser. A few notes on Aroostook, or, “The County,” as I’ve learned to call it … It’s in Northern Maine. What you’re now thinking? Further North. Nope, further than that. It’s North of … Continue reading

the experts

the experts

{image is a screenshot of Bill and Ted from Bill and Ted’s Excellent Adventure} Dr William Acton. Ever heard of him? He was quite renowned in his day (his day being the mid-nineteenth century.) In 1836, at the age of 23, Dr. Acton moved to Paris where he studied the functions of the generative and … Continue reading

our blue

our blue

  {photo is an abstract blue image. i find it quite beautiful.} it is april blue-hued, thick-with-fear, overwhelming, tired, angry, out of words, april blue blue-hued blue what is that song? damn it, what is that song? blue-hued into blue a mellow blueness yes i start to hum the words come Where are you going? Where are you … Continue reading

communication

communication

I am in an unfamiliar place. I do not speak the language, nor know the local customs. I do not feel well. I approach a woman nearby. “Excuse me, please,” I say. “I don’t mean to bother you, but I have a stomach ache. Can you help me?” She puts her finger to her lips and … Continue reading

care and handling

care and handling

Yesterday, I posted the following on Facebook: Three years ago when Brooke needed to have a couple of baby teeth pulled, we were told (and agreed) that the only way to do that would be in a hospital, under general anesthesia. That was what we did. Last month, we were told that she needed to … Continue reading

gearing up for april

gearing up for april

– Last year, Katie came to me with a question. “Mama,” she asked, “now that we don’t feel like we can support Autism Speaks anymore, what can I wear to school for Autism Awareness Day?” While I know the question of what to wear may seem silly to some, we take our autistic pride pretty seriously around … Continue reading

a meltdown is not a tantrum

a meltdown is not a tantrum

{image is a photo of a young man curled into a ball, covering his head with his hands} – On the outside it might look like a sudden explosion, but it’s actually the final few minutes of a process that may have taken hours or even days to develop. Bec at Snagglebox, What Does a … Continue reading