sometimes

{image is a screenshot of the guest replies to Brooke’s birthday party invitations on Paperless Post} Brooke’s 12th birthday party is on Sunday. Every day, sometimes multiple times a day, sometimes multiple times an hour, she asks to see the guest list on Paperless Post. She looks for new responses. She repeats the same line, “Ryan … Continue reading

she can hear it

she can hear it

Hi Mom, I wish Oomah can come back to life and come to my show [on Thursday] when I sing happy. – From Brooke’s email home from school yesterday afternoon – I wish Oomah could be there too. But just like you said, she’s always watching us so, in a way, she WILL be there. … Continue reading

the silence becomes a comfortable one

the silence becomes a comfortable one

  {image is a photo of me and Katie, nose to nose in a pool. I’m guessing it’s 2004.} An uncomfortable silence settles over the car following what I’m sure she’d characterize as the lecture I’ve just spent the last ten minutes of our drive delivering. I’m not sure what else to say as I … Continue reading

her mark

her mark

My girl came home from school crushed. She tried to pretend it was nothing – all part of the process, after all. But the bravado crumbled quickly. She wanted the part so badly — Ida in Honk, a musical version of The Ugly Duckling. It was her eighth grade musical – her last chance to … Continue reading

care and handling

care and handling

Yesterday, I posted the following on Facebook: Three years ago when Brooke needed to have a couple of baby teeth pulled, we were told (and agreed) that the only way to do that would be in a hospital, under general anesthesia. That was what we did. Last month, we were told that she needed to … Continue reading

gearing up for april

gearing up for april

- Last year, Katie came to me with a question. “Mama,” she asked, “now that we don’t feel like we can support Autism Speaks anymore, what can I wear to school for Autism Awareness Day?” While I know the question of what to wear may seem silly to some, we take our autistic pride pretty seriously around … Continue reading

to the students of my alma mater – thank you

to the students of my alma mater – thank you

Editor’s note: Lest you think that Diary is becoming the home of the open letter, this one was written by request. My dear friend, Emma (of the fabulous blog, Lemon Peel), wrote to ask for my help. A fellow Smith Alumna, she remains in contact with the Smith Disability Alliance, who have been grappling with this … Continue reading

a meltdown is not a tantrum

a meltdown is not a tantrum

{image is a photo of a young man curled into a ball, covering his head with his hands} – On the outside it might look like a sudden explosion, but it’s actually the final few minutes of a process that may have taken hours or even days to develop. Bec at Snagglebox, What Does a … Continue reading