Tagged with autistic

hot potato

{image is a photo of Brooke, standing on her tiptoes, trying to look over our back fence} Last weekend, a comment showed up on Diary’s “About” page: I have been hoping that one day someone with some following would write about the things that tend to divide the autism community. Honestly I think you’re the one. … Continue reading

awesome with a side of extra awesome

{image is a photo of Conner heading off to New York last year. He’s showing off his snazzy suitcase, on which his cousin Kevin painted a brightly colored autism ribbon as a surprise. Looking at Conner’s face, it’s pretty clear that it was a very good surprise.} – Yesterday, I got a message from my … Continue reading

dear abby cadabby

dear abby cadabby

Dear Abby Cadabby, Hi, kiddo. You might remember that we met this past summer. This was you hugging my eleven year-old daughter, Brooke, who is autistic … {image is a photo of Brooke hugging Abby Cadabby at Sesame Place, Summer, 2013} She was sooooo excited to meet you at Sesame Place this summer, along with Elmo … Continue reading

ten minutes in

Editor’s note: My daughter didn’t write this. I did. It’s a guess. A guess as to what it feels like to be inside her head. A guess based on years upon years of watching her, listening to her and collecting and piecing together every clue she has offered, in whatever way she offered them. You … Continue reading

in the open

It’s a metaphor * I need to come back to this. I don’t want to, but I feel like I have to. For two reasons. One is that I fear I may have left you with the wrong message – that I don’t think that we should be discussing issues surrounding autism and sexuality publicly, which is not the case. … Continue reading

my daughter’s hands

Stopping on the way out of camp to touch the earth. July 3rd, 2013 * Those who trust us, educate us. T.S. Eliot . My girl feels her way through the world. It’s what she does. It’s the way that she learns. It’s a big part of who she is. Sensorial experiences mean far more … Continue reading

circles

* A 780 ft (240 m) crop circle in the form of a double (six-sided) triskelion composed of 409 circles. Milk Hill, England, 2001. * I draw circles and sacred boundaries about me; fewer and fewer climb with me up higher and higher mountains.—I am building a mountain chain out of ever-holier mountains. ~ Friedrich … Continue reading

of scripts and bras

~ The difference between life and the movies is that a script has to make sense, and life doesn’t. ~ Joseph Mankiewicz ~ Two nights ago, at the dinner table: * “When I count to three say, everybody say, “Okie Dokie Artichokie!” “Brooke,” I say, “remember, you can ASK us …” She doesn’t wait for … Continue reading

a conversation with ari

. ~ The back story Ed note: Ari Ne’eman is Co-Founder and President of ASAN, the Autistic Self-Advocacy Network. He is also a Presidential Appointee to the National Council on Disability. Ed other note: Since my conversation with Ari was not ‘on the record’, so to speak, I’ve limited the following to my side of … Continue reading