Tagged with autism

extinction burst

extinction burst

{Image is a photo that I inadvertently took with my phone. The world looks very different when viewed through an alternate lens.} Ed note: Last night, I shared a quote on Diary’s Facebook page about the importance of “indulging” Brooke’s scripts. Tomorrow, I will have the honor of sharing an autistic perspective on ABA therapy … Continue reading

autism and sexuality – consulting the experts

autism and sexuality – consulting the experts

Image is a photo of two people holding hands – Sexuality poorly repressed unsettles some families; well repressed, it unsettles the whole world. Karl Kraus Whether or not it’s something we are comfortable discussing, sexuality is a thing. A big thing. A huge part, in fact, of the human experience. So huge that it’s part … Continue reading

credible

credible

It’s Saturday morning. Boston Ballet is holding auditions for the Nutcracker. Hopeful little ballerinas gather, line up, and are shepherded in various directions to go do whatever it is that they do. They are color coded, as it were. The littlest in light pink leotards, the slightly older girls in pale blue. All of them have … Continue reading

welcome to the club – evolved

In May of 2009, I wrote a post that would, in many ways, come to define Diary. It has been shared around the world, reprinted in more languages than I can count, appears in two anthologies, and, in a slightly edited version, will soon debut in the inaugural issue of Zoom Magazine. When I looked at … Continue reading

different roads to success

different roads to success

{image is a photo of Brooke standing on Luau’s shoulders on the beach in Newport, RI. She looks as though she is flying. Photo courtesy of Connerton Photography’s magic lens. All rights reserved.} – During the talk, Dr Draper asked a ten year-old girl to come to the stage. She asked her her name. The girl … Continue reading

what you can’t tell me

Image is a photo of Brooke at age five. She is at the top of a climbing wall during a class for autistic kiddos that I helped to create at a local play gym. One of the first of so many CAN’Ts, WON’Ts and WILL NEVERs that became DIDs.    You can tell me that … Continue reading

we leave as family

we leave as family

Note: Image descriptions are at the bottom of the post. Dear Team Brooke,   Six years ago, Luau and I were terrified. We were clinging to the door of the preschool for dear life, unable to imagine that our beautiful, brilliant, complex girl would be able to survive elementary school.    Today she will walk across … Continue reading

judgment

judgment

{image is a fist raised in protest, solidarity} Years ago, a colleague of mine told me that I was the least judgmental person she’d ever met. I laughed. Hard. I told her that she really needed to get out more. She said, “No, really. You are.” I secretly took pride in her words. I have … Continue reading

autism, puberty and respect – part two

autism, puberty and respect – part two

Image is a photo of a tree. ‘Cause nature.  Many of you have asked me to write about how we are handling puberty with Brooke. Autism, Puberty and Respect (Part One) was about why I won’t. Some time ago, Brooke’s older sister, Katie and I came to an agreement about what I would write about her … Continue reading

being heard

  {image is a photo of Lydia and Brooke. Lydia has one hand on Brooke’s shoulder. Her other hand is holding a fork above a plate of food, which Brooke is apparently eyeing. Coincidentally (or not?), Lydia’s t-shirt reads, “Got a Story?”} I am a proud autistic of color working with the Autism Women’s Network to … Continue reading