Tagged with autism speaks

dear abby cadabby

dear abby cadabby

Dear Abby Cadabby, Hi, kiddo. You might remember that we met this past summer. This was you hugging my eleven year-old daughter, Brooke, who is autistic … {image is a photo of Brooke hugging Abby Cadabby at Sesame Place, Summer, 2013} She was sooooo excited to meet you at Sesame Place this summer, along with Elmo … Continue reading

wear the change

wear the change

- A couple of weeks ago, Katie came to me with a question. “Mama,” she asked, “now that we don’t feel like we can support Autism Speaks anymore, what can I wear to school for Autism Awareness Day?” While I know the question of what to wear may seem silly to some, we take our autistic pride … Continue reading

again

again

Text: If you really want to be an advocate, start by listening to the people you claim to be advocating for. Earlier today, I sent the following email to Liz Feld, President of Autism Speaks. It is short and not particularly well-written, but it is what it is. I didn’t feel the need to repeat … Continue reading

perspective

- Oh, guys. I’m all over the place this morning. You see, comments and questions and, “But you don’t understand”s are still steadily streaming in in response to my post about the damaging rhetoric that Autism Speaks insists on continuing to use despite the passionate protest of Autistic people and their families. And so, while … Continue reading

this is autism – flashblog

- As you may know, there’s a flashblog happening today called This is Autism, in response to Suzanne Wright’s recent repeated use of the phrase in last week’s Autism Speaks to Washington: A Call to Action. The request for submissions reads as follows: Tell us what “This is Autism” means to you. You can write … Continue reading

the ends, the means and the cost

- To the parents who said that Suzanne Wright’s Op-ed reflected their experience with their children, I want you to know that I hear you. I want you to know that I do not paint Autism with just as broad a brush as Mrs. Wright did. Autism is a spectrum. A spectrum as vast as … Continue reading

no more – a letter to suzanne wright

My girl cracking herself up with scripts last night I was once asked, “If you have so much trouble with the fact that Autism Speaks uses the words “disease” and “cure” in its marketing materials, what would you have them say instead?” I thought about it for a moment, and said, “Well, I suppose I’d … Continue reading

disney – a work in progress

Ed note: I am not a journalist, friends. I’m a mom with a blog. While I will do my best to make this accurate and concise, I’m sharing my, rather than reporting a, story. Jess Although changes to Disney’s Disability Policy had long been the subject of speculation, rumors about its imminent demise hit a … Continue reading

why

~ Three times in the last two weeks, I have been asked some version of the same question. Why do you continue to engage with Autism Speaks when you clearly find so many things about the organization so troubling? Three times, I have answered essentially the same way. Because they are visible. And because they … Continue reading

the hearing

~ C-Span’s Coverage Of Yesterday’s Congressional Hearing On The Federal Response To The Rising Rates Of Autism . “It’s an ethical mistake whenever we sacrifice the possible in the name of the probable. As national nonprofits, like government so far, we too have failed to lead. Our centrists have frequently been too hesitant, but more … Continue reading