Tagged with autism speaks

the color blue

the color blue

{image is a hand painted mosaic rainbow lightbulb and the beautiful, multicolored light which it casts. Click on the image to order one from MoodLights on Etsy, with whom I have no affiliation whatsoever} As many of you know, after years of trying desperately to change the way in which Autism Speaks approaches autism advocacy, I … Continue reading

success

success

{Image is a photo of my beautiful friend, Barb, co-author of one of my favorite books and generally one of my all-time favorite people. She is, by anyone’s definition, a success. She is non-speaking.} Oh, friends. There’s something I have to say. I hope you’ll indulge me. Actually, please do indulge me. It’s important. Yesterday, I … Continue reading

dear diezel

  Toni Braxton, a Grammy award-winning singer who had an abortion a decade ago, pined in her recently released memoir that perhaps God punished her for the procedure by inflicting her second-born son with autism. She said the guilty feeling stems from a strict Christian upbringing that required her to memorize 26 Bible passages each week … Continue reading

dear abby cadabby

dear abby cadabby

Dear Abby Cadabby, Hi, kiddo. You might remember that we met this past summer. This was you hugging my eleven year-old daughter, Brooke, who is autistic … {image is a photo of Brooke hugging Abby Cadabby at Sesame Place, Summer, 2013} She was sooooo excited to meet you at Sesame Place this summer, along with Elmo … Continue reading

wear the change

wear the change

- A couple of weeks ago, Katie came to me with a question. “Mama,” she asked, “now that we don’t feel like we can support Autism Speaks anymore, what can I wear to school for Autism Awareness Day?” While I know the question of what to wear may seem silly to some, we take our autistic pride … Continue reading

again

again

Text: If you really want to be an advocate, start by listening to the people you claim to be advocating for. Earlier today, I sent the following email to Liz Feld, President of Autism Speaks. It is short and not particularly well-written, but it is what it is. I didn’t feel the need to repeat … Continue reading

perspective

- Oh, guys. I’m all over the place this morning. You see, comments and questions and, “But you don’t understand”s are still steadily streaming in in response to my post about the damaging rhetoric that Autism Speaks insists on continuing to use despite the passionate protest of Autistic people and their families. And so, while … Continue reading

this is autism – flashblog

- As you may know, there’s a flashblog happening today called This is Autism, in response to Suzanne Wright’s recent repeated use of the phrase in last week’s Autism Speaks to Washington: A Call to Action. The request for submissions reads as follows: Tell us what “This is Autism” means to you. You can write … Continue reading

the ends, the means and the cost

- To the parents who said that Suzanne Wright’s Op-ed reflected their experience with their children, I want you to know that I hear you. I want you to know that I do not paint Autism with just as broad a brush as Mrs. Wright did. Autism is a spectrum. A spectrum as vast as … Continue reading

no more – a letter to suzanne wright

My girl cracking herself up with scripts last night I was once asked, “If you have so much trouble with the fact that Autism Speaks uses the words “disease” and “cure” in its marketing materials, what would you have them say instead?” I thought about it for a moment, and said, “Well, I suppose I’d … Continue reading