Tagged with autism speaks

the hearing

~ C-Span’s Coverage Of Yesterday’s Congressional Hearing On The Federal Response To The Rising Rates Of Autism . “It’s an ethical mistake whenever we sacrifice the possible in the name of the probable. As national nonprofits, like government so far, we too have failed to lead. Our centrists have frequently been too hesitant, but more … Continue reading »

nothing about us without us

. Ed note: Yesterday, I sent the following letter to Autism Speaks Co-Founder Suzanne Wright, President Liz Feld and three others. I added the links this morning for your reference.  ~ Dear Suzanne, Liz, et al, I hope this finds you all well. I was thrilled to read yesterday that the House Oversight and Government … Continue reading »

a mostly awesome day in the life

; ~ I had a LOT of trouble dragging my sleepy butt out of bed this morning, so we’re going to have to do this quickly. You know what that means, right? Questionable grammar, a high likelihood of typos and a lightening-speed round-up of things I want to tell you without a whole lot of detail … Continue reading »

what i wish i could tell you

~ I feel like I do this a lot. That I tell you that there are so many things that I want to tell you – that I would tell you – if only I had the time. Of course it’s a nifty trick, this. Because by telling you what I wish I had time … Continue reading »

47 days

* Change will not come if we wait for some other person or some other time. We are the ones we’ve been waiting for. We are the change that we seek. ~ Barack Obama I am grateful that Liz has begun the process of reaching out to self-advocates. I am hopeful that through her conversations, … Continue reading »

lo hicimos

~ OK, friends. Here’s the deal. I have a LOT to tell you about this whole half marathon ordeal. Like a lot. Like enough that I could probably stop writing about anything else and just talk about this until the end of the year. But don’t worry; I won’t. We’ll leave the running talk to … Continue reading »

put me in coach

* I swear I’m not going to start putting up slide shows all the time. Really, I promise. But well, for the life of me I couldn’t figure out how to narrow down the photos from the other night, so I’m doing it just one more time. It all started when Liz Feld asked if … Continue reading »

they

~ On Sunday morning, Congressman Todd Akin (R-MO) told a reporter from KTVI the following: “It seems to be, first of all, from what I understand from doctors, [pregnancy from rape is] really rare. If it’s a legitimate rape, the female body has ways to try to shut the whole thing down.” Congressman Akin sits … Continue reading »

inflection point

~ It’s not usually a good start to a relationship by showing up to your first meeting with a list of problems. But I thought perhaps if I also came armed with ideas for their resolution, maybe it wouldn’t be so bad. Within a week of taking over as president of Autism Speaks, Liz Feld … Continue reading »

13.1 or bust – who’s in?

* 2012 Allstate Life Insurance Boston 13.1 Half Marathon  September 16, 2012 Team Up with Autism Speaks * All right, people, I understand that I do not have what one would call a particularly good track record when it comes to this sort of thing. In fact, the only other time that I made a … Continue reading »