inter-action

inter-action

{image is a photo of a teddy bear and Tigger, both in their jammies for the pajama party} – “They’re just standing there,” he said. “I can’t tell if they’re … ya know, interacting or not.” There was a pause as he carefully gathered his words. “I just … I didn’t know if I should be, … Continue reading

the price of independence – sharing it

{image is a photo of the Statue of Liberty} Until we are all free, we are none of us free. – Emma Lazarus (often misattributed to MLK Jr, who later paraphrased Ms Lazarus) – I have so many thoughts about Independence Day that, quite frankly, really have almost nothing to do with the Fourth of … Continue reading

not a baby

not a baby

{Image is a photo of Brooke running on the beach in Newport, courtesy of Connerton Photography, all rights reserved}  So I have a story that I really wanted to tell you guys this morning. It’s about a recent conversation that I had with Brooke about the fact that some people use words to communicate and others don’t. … Continue reading

digging in

digging in

Yesterday morning, Luau wrote the following. Now, before you go sharpening your keyboards to lambaste him for writing it and me for sharing it, please remember that this is just the beginning of the story. (Note: I’ve edited it very slightly to make it Diary friendly.)   – {image is a photo of Brooke sitting on … Continue reading

she gets it

she gets it

{Image is a photo of Winnie the Pooh swilling Vodka from the bottle} The following is part of a much bigger thought, but the context is currently too overwhelming for me to wrangle into words so I’m just going to start here, in the middle, and we’ll come up with a beginning later. Cool? Cool. … Continue reading

typical sucks

typical sucks

  {image is a photo of Brooke, sitting on the kitchen counter, covered in shaving cream, as you do.} Ed note: I’m out of time, so the following is unedited. Godspeed.  There was a time when I hoped that someday Brooke’s speech would become more colloquial, more typical-sounding, if you will. It was never one … Continue reading

chloe’s story

chloe’s story

{one of my favorite pictures of Chloe, Katie and Brooke} Almost two years ago, I met Chloe, a young woman on the autism spectrum who had reached out to me through Diary. Within days of our meeting, she and Brooke connected via email. I wrote a post about their initial interaction HERE. It’s a little confusing as … Continue reading

the color blue

the color blue

{image is a hand painted mosaic rainbow lightbulb and the beautiful, multicolored light which it casts. Click on the image to order one from MoodLights on Etsy, with whom I have no affiliation whatsoever} As many of you know, after years of trying desperately to change the way in which Autism Speaks approaches autism advocacy, I … Continue reading

i’m sorry, hold the but

i’m sorry, hold the but

{image is a photo of me and Katie laughing together on the beach, courtesy of Connerton Photography, all rights reserved}  Katie and I are hanging out in my room. We’re sitting on the floor, as you do. “Mama,” she says, “Do you want to tell me what’s bothering you? I mean, you don’t have to … Continue reading