May, 2011
~
Dear EEG Tech,
I’m sorry that it’s so crowded in here. I’m sure it makes your job tougher, trying to work around all of these people. But well, there’s not much that I can do. You try to convince them to stay home. Ain’t gonna happen.
So you might want to think about moving us into a bigger room.
Because you see, that beautiful girl on the table there? She has an entire village that travels with her.
There are the grandparents who are pretending to be calm right now, waiting for our call.
There are the friends and extended family members who hold this little girl in their hearts because she’s theirs every bit as much as she’s ours.
There are the people at school — the teachers and aides and therapists, the receptionists, the custodians — all of the people who adore her – who spend as much time with her every day as we do, cheering for her, commiserating with her, pushing her, guiding her, protecting her, praying for her, believing in her.
And then there are the people who have never met her. Who know her through nothing but words on a page and yet, who are here with us today — holding her, holding us, caring for her like nothing I could ever have imagined nor hoped. Who are just as much her family as anyone else in this room.
So I’m sorry about the crowd, but you’re just going to have to work around them.
Because they’re not going anywhere.
Sincerely,
Jess
You’re so right! We’re not going anywhere. …and you, knew I was pretending to be calm. Did my message to you at 4 AM give me away. Damn!!!!!
Love you and right there with you and Brooke.
Mom (Grammy)
Oh, how we hate putting on all those “stickers.” Thinking of you and praying for you today. Hang in there. {{Hugs.}}
I love this and will be thinking of you guys today. xo
Thinking of you guys! I hope once this is all done that you all get some much needed rest.
Good thoughts and prayers coming your way!! I hope you can feel us all there with you!
Good luck! (Love that social story!)
Hang in there! We’ve had so many EEGs at Children’s, and they usually work as fast as they can and are super nice.
I hope they can find something helpful.
Good luck Hope it goes smoothly and that the rest of the day is wonderful for all of you
Not.moving. Love you. xoxo
Sending along my best wishes and hopes that you get some answers!
Hiding in the back, waiting patiently for this to be over and answers to be found.
I’m there too!
I hope the whole event proves s he is healthy, and I can’t wait to hear her take on things.
. May she feel the Lords amazing love surround her during this time and you too my friend.
Hang in there. My son calls those leads “the stickies.” I hope you get answers soon.
Sending many prayers for you, your family and the “village” today.
PEACE from the Laughter, Could be the Missing Piece mum. We have been where you are and it is tricky (and sticky). The worst part for James was taking off the stickers. We will be thinking of you that the test will provide answers that you are looking for.
Got that right!
Karin
Love the crowd you hang with…. And, they aren’t going anywhere. Blessings this day for you and your sweet family. Praying the outcome is exactly as you hope and sending positive karma your way.
Thinking of you. Hope everything goes well.
Yep, not going anywhere. As one of those who knows your beautiful family only through your words, I’m holding you all in my heart today.
Dern tootin’ we’re there!
Hope everything went well and that the storm passes you by or at least leaves your power working.
We’re here! Sending thoughts and a big hug to you.