Posted in November 2011

HO HO HO

* OK, let’s be honest. Holidays and autism are a tough mix. And there are some particular traditions that one could easily argue were established for no other reason whatsoever than to, well, torture our children. Case in point – the Santa visit and photo-op. Some of you might remember that last year, at the … Continue reading

i scream, you scream ..

. It’s unseasonably warm – a balmy sixty degrees in New England at the end of November. Brooke and I are crossing the street, headed for the ice cream shop. I watch the door to the shop open and close as we walk toward it. I fear we’re not the only ones with this idea. The … Continue reading

#youmightbeanautismparentif…

. . If you’re on Twitter, you may have noticed something of a phenomenon lately. Over the last week or so, a community has begun to form. Some brilliant soul (if you know her / him / them please leave details in the comments!) began to use the hash tag #YouMightBeAnAutismParentIf .. and it caught … Continue reading

an embarrassment of riches – still

The following was originally published on November 26, 2008. Except for the fact that the iPod Shuffle has long since been replaced by an iPad, it all holds true today.  . * Things I am thankful for (#s 1-13 of 17,846,319 and counting) Katie’s laugh – not her polite little chuckle, the real one. The one that comes from … Continue reading

waking up with a roar – sort of

* The nurse wants to chat as we walk through the labyrinth of hallways to the children’s recovery ward. I don’t. I do my best to make sounds that I think are appropriate as she rattles on. Periodic Mmm-Hmm’s and Uh-huh’s seem to satisfy her. Anything to keep her moving forward. For God’s Sake, woman, … Continue reading

outpatient surgery, autism style

. Friday, 5:30 am . Brooke and I have checked into the Day Surgery unit at Children’s Hospital for a 7:30 procedure. She needs a total of four baby teeth pulled and there’s no possibility of doing it without anesthesia. I’m terrified, but holding it together miraculously well, if I don’t say so myself. Luau will … Continue reading

thank you, mr mark

* Strange is our situation here upon earth. Each of us comes for a short visit, not knowing why, yet sometimes seeming to divine a purpose. From the standpoint of daily life, however, there is one thing we do know: That we are here for the sake of others – for the countless unknown souls … Continue reading

somebody get my agent on the phone

* On Sunday night, I posted the following on Diary’s Facebook page ~ “OK, so vanity would normally keep me from sharing this publicly, but I decided we all could use the laugh and the ‘OMG, me too’ realization that *many* of us with little (and not so little!) sensory seekers often serve as human … Continue reading