michael

 

It is Inauguration Day. The dawn of a new era. I had a wonderful little piece of America the Beautiful that I had planned to share on this historic and incredibly poignant day. I’m sorry to let you down, but I’ve decided to abandon my original plan in order to share a story with you. I can only assure you that what follows here is in keeping with the spirit of the day – HOPE.

So join me, won’t you?

On Friday night, I spoke at the Autism Speaks awards dinner. I was nervous, but I found it interesting that I was far more anxious about finding the time to put together what I would say than I was about actually having to say it. Quite a contrast from the last time I spoke in front of largely the same crowd back in August, when it was all I could do to hide my shaking knees behind the podium. 

As for the speech itself, I used a lot of material from ‘diary’ and pieced it together in a way that hopefully got my message across.

I had the unenviable task of following an incredible young speaker. His name is Michael Mayes and he is an eighteeen year old senior at Marshfield High School, just to the South East of Boston. Mike was fantastic. He was poised; he was charming; he was completely engaging. He commanded the room and grabbed our hearts from the moment he took the mic.

Mike is a successful student, an outstanding athlete, a mentor to young children, a role model, and a political activist. He is one of just twenty-eight young people selected by Massachusetts Governor Deval Patrick to serve on a state-wide youth advisory council. Quite a resume to boast at eighteen. He looks forward to attending Colby Sawyer College next fall. And let me tell you, they will be lucky to have him.

Oh, and Mike has autism.

He talked about the teachers who gave him a chance – the ones who believed in him and who saw what he was capable of. He talked about the coaches who knew he could do anything he wanted to do. He made special mention of his wonderful, dedicated parents and his obviously beloved aide, Mrs Ridge, who has been with him since kindergarten. She sat beaming at him from their table, no less proud than his own parents. 

In short, Mike is what it’s all about. Confident, funny, soon-to-be-running-the-world Mike. Mike who came up to me after I spoke and told me that I had done a good job. “You told really good stories,” he said. Mike, who stood before a Red Sox pavilion full of parents and offered himself up as living proof that our efforts matter – that success is within our reach.

After I spoke, a number of people came over to me to share their thoughts. The support, the caring, the raw outpouring of emotion at these gatherings is gratifying and overwhelming. From the grandfather who told me about his grandson’s first words (a full sentence at eight) to the mom with tears in her eyes who told me that despite a joking protest in my speech, I am indeed the mother of the year (I’m not by a long shot; but I loved her for saying it). From the man who told me that he knows a lot of people who get $25k a speech who don’t speak as well as I just had (I of course thanked him and told him I’d do it for $20k) to the mom who chided me for making her cry (again). From the uncle with a birthday party story of his own to the mom who I had met after I spoke at the Kick-off and then had seen again at a lecture not long thereafter. She came to tell me how much she adored Brooke. I was confused. Did she somehow feel like she knew her? Turns out I had mentioned the Superstars class to her and her son now attends every week with my baby girl. The world gets smaller.

There was a string of parents, adults with autism, friends and grandparents telling me their own stories. And then there something entirely different.

(Come a little closer. This is important.)

A lady came over to my table and sat down with an obvious sense of urgency and purpose. “You need to know something,” she said. “My boy – he didn’t speak when he was five.” She paused, then repeated each word, one at a time. “He. Didn’t. Speak.”

She drew her chair closer to mine – the better to make sure I was really listening, really hearing her. And then she continued.

“I need you to hear that,” she said. “I need you to understand that. Keep working. Keep at it. It will all come together.”

I was trying to be respectful, but she must have seen the confusion on my face. She realized that she hadn’t yet introduced herself. 

“I’m Mike’s mom.”

Time stopped. All the noise in the room disappeared. Nothing else existed.

This incredible young man who had stood before a crowd of nearly 300 people and drawn in every last one of them. This funny, charming teenager who was so poised and engaging. This young man who was part of three championship teams. This kid who coached baseball in the summers and was headed off to college next fall. This young adult who was confident and self possessed and who clearly knew who he was and where he was going.

That young man had no words when he was Brooke’s age. 

“He didn’t speak,” she said.

She paused again, staring right into my eyes.

“Will you remember this?” she asked.

I promised her I would never, ever forget. We hugged. The embrace of battle-worn mothers who barely know one another and yet who know it all. 

So, please – just as I promised Mrs Mayes, I want you to promise me. Promise me that you won’t forget Mike and all that he represents. Mrs Mayes said, “Keep working. Keep at it. It will all come together.”

Mrs Mayes is no doubt a neat lady, but she’s no different than you or I. She had the strength. She found the tools. So will we. Just like her, we have the love for our children that won’t let us fail. And someday, if they should want to, our kids will be the ones standing in front of the crowd inspiring all of us to greater heights. 

 

About these ads

27 thoughts on “michael

  1. Please note, management cannot be held responsible for lost items, burned lunches or any other mishaps that may or may not occur while reading.

    According to our illustrious President-elect, we are (just this very day!) ushering in an era of personal responsibility.

    However, this doesn’t mean that I don’t feel for you, Robin. I do hope you got something to eat.
    :)

  2. I feel like you wrote this post just for me. Sniff. =}

    (I know you didn’t, but still…thank you)

    Thanks for sharing Mike’s story and the very important exhortation from his mother to keep working.

  3. Oh hell, I’ve already been crying all mornign what’s a few more tears, right?? Yeah, like rhemashope wrote, I feel like you could’ve written this for me.

    Ironically, as I have been watching the coverage on GMA today, I’ve been musing about whether the day would come when this country would/could elect a president who’d struggled with cognitive disabilities as a child. I know it seems very far fetched, doesn’t it?

    But, I imagine, so did the idea of Michael at 5 becoming the Michael you wrote about. Hope *does* spring eternal and pays tremendous dividends. xoxo

  4. “The embrace of battle-worn mothers who barely know one another and yet who know it all.”

    That’s why we’re here. Thanks for bringing us together and for sharing Michael’s wonderful, inspirational story.

    Love and hope, my friend.

  5. it really is quite a site: jess …up there, all calm and collected, sharing bits of her life, telling people about her changes, growth…

    a lot of people go their entire lives without a great deal of emotional growth…they kind of box the world up in rigid categories, insist on being a certain way, go through the motions…

    so. it’s nice to see someone who can take on the pain that goes along with meeting a challenge, who can open their heart and learn about themselves, the people around them.

    i mean, the other speech was only in august…how different will you be in a year from now? knowing that you’ll learn from everything that happens this year…actually it’s sort of scary. you need to stop…take a breather from the whole learning and growing thing…give the rest of some time to catch up.

    hmmm. coffee stunts growth…so maybe alcohol stunts emotional growth. start turning it up, girl. woo! your making the rest of us look bad.

  6. Now if only people would understand the value of that aide. Wish we could afford one. My little guy is so close… so close… yet so far.

  7. profart – we don’t pay for brooke’s aide, nor, as i understand it, did/ does michael’s family. in our case, we proved to the school system (relying heavily on anecdotal evidence from her integrated preschool teachers and therapists along with a an unequivocal recommendation from her very well respected neuro-psych) that the aide would be the only way to ensure that she had access to the curriculum. the district was thereby legally obliged to provide the service. of course, i’ve no idea where you may live, and some districts/ states/ countries are certainly more evolved than others.

    if you’re in the US, you may want to check out the following link ..

    http://www.autismspeaks.org/community/fsdb/category.php?sid=5&cid=26

    hit ‘change my state’ on top of the page and it will give you local resources. hopefully someone could lead you in the right direction. don’t give up on getting your son what he needs!

  8. Wow, Kyra – I’d venture to say that’s the highest compliment I could get from you!

    Thank you, Madame. It’s all due to Michael. That kid kicked @ss! Not to mention Mrs Mayes.

    But the man who said this:

    Let it be said by our children’s children that when we were tested, we refused to let this journey end, that we did not turn back, nor did we falter; and with eyes fixed on the horizon and God’s grace upon us, we carried forth that great gift of freedom and delivered it safely to future generations.

    Yeah, he wins.

    xoxo

  9. Jess,

    When we lived in Texas, our top-notch school district refused to give my non-verbal, sweet boy an aide … We hired an attorney, but had to make the choice to get him the intervention he needed, or spend time fighting.

    It’s really, really bad out there.. :(

  10. Jess, I know, without a shadow of a doubt, you posted the link to this post for ME tonight. You posted this so I would read the last two paragraphs. My heart is breaking, my mind is racing, I am so tired and weary. I wonder how I can keep going when my son is so out of control no matter how hard I work. When my son has these outbursts that I am becoming much more understanding of, but still having such a hard time dealing with in front of our younger children…When he has such a low self esteem because he doesn’t understand why his mind works the way it does, but he’s smart enough to know that he is different…I have been sitting here for a long time listening to worship music and praising God, but begging him for help. Then? I read this…I read the last two paragraphs…your words reminded me, I can do this. Please, God, give me the tools and give them to me fast, but yes, I can do this! Thank you for posting this link tonight!

  11. I’ve been following your blog for about a month, and I have a complaint-I have yet to get through ONE post without tears!!!! But in a good way, keep up the fabulous work :-). You’re an inspiration to all of us!

  12. Thank you so much for sharing this wonderful story. My son also didn’t speak at 5. Bobby is 17 and speaks. Everyone use to tell me once the children turn 5 they stop growing. That is so far from the truth. Every year we seen improvement. They use to tell use, it’s over once they reach High School. I am so glad I didn’t have the time to really listen because how wrong they were! The biggest improvement we ever seen was his 10 grade year! I am amazed daily at how much he is taking everything in and blossoming! Last night, we went to the High School Christmas Party, the kids were dancing and having a great time! Who my son is today is nothing like who he was when he was 5. He didn’t speak, now talks all the time!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s